Welcome to Holland by Emily Perl Kingsley. c1987 by Emily Perl Kingsley. All rights reserved.

I am often asked to describe the experience of raising a child with a disability- to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...

When you're going to have a baby, it's like planning a fabulous vacation trip- to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around... and you begin to notice that Holland has windmills... and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say, "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things... about Holland.

Tuesday, November 23, 2010

Mitch

I have had a lot of time at home lately.  On Friday, Mitch had a really bad seizure and ended up in the hospital.  He kept “pausing” when breathing so we knew he was in bad shape but it was still a shocker to see his co2’s in the 80’s.  His doctor looked at me and said, this is usually something that requires intubation.  “What?” I thought.  I haven’t heard that word since he was a baby in the NICU!  So they bagged him for a little while and he didn’t tolerate that very well, I can’t blame him.  We did a few other things as well and by the time we got another blood gas, his co2’s had dropped into the 60’s.  What a relief!  By the end of the day his blood gas was perfect!  He can flip in a matter of minutes.  It always amazes me just how fast he changes, one minute he can be a little sick and in the next minute we could be rushing him to the hospital wondering if this is it, and then right back to normal!?!  He is still very sick, it will take a while to recover from this one.  This sweet boy has endured so much in his little nine years.  He is amazing.  I feel incredibly blessed to be his mother and I will enjoy him for as long as we have him.  Everyday is a blessing and a miracle.  Love you baby.
Wouldn’t you know, my whole family is sick right now.  I know, big surprise.  We have the greatest neighbors and friends that have taken such good care of us through this.  So in the days that we have been home, (when I can muster up the strength, energy and time) I have been enjoying our family pictures and getting Christmas cards done and all that fun stuff.  Times a runnin out!  I have really loved seeing these of sweet Mitch…
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Monday, November 15, 2010

San Diego, Nov 2010

We met my parents there for a few days and had the best time.  Its been a while since we've seen them and I forget how much fun they are!  I was rolling on the ground with laughter most of the time and the other time was probably spent at Bates Nut Farm.  We just can't get enough of that place.  Will and Dad, on the other hand, had a heaping list of "honey do's" for my mom.  She bought some things for the house and had them busy, busy, busy!  They also helped out at the golf tournament for Hal and he didn't say it, but I think Will was wishing he had taken his golf clubs and golfed in the tourny instead.  Maybe next year:)  Fun was had by all!  We love it there.  Time was flying by and before we knew it we were headed our seperate ways, mom and dad went back to the vineyard and we were headed back to... snow:(


The boys couldn't get enough of hiking the trails around the house.  Grandpa might be sorry he showed them cause he sure got his exercise keeping up with Mad and Maj!  Can you spot 'em?
Here they come...

The boys feeding the ducks at Bates...

Maj fell asleep while Grandma was reading "Skippy Jon Jones", their fav book:)


Big Boy School Bus

LOOK HOW BIG THAT BUS IS THAT MY LITTLE 3 YEAR OLD IS ABOUT TO GET ON!
Off he goes...  Have a great day at school Major!


Thursday, November 11, 2010

DID YOU SEE IT????

Turn to page 113 of this month's Ensign....
http://lds.org/churchmagazines/EN_2010_11_00___09211_000_000.pdf

Monday, November 1, 2010

Halloween Happenings 2010

This is my favorite holiday!  I love all the spookyness of this month when the leaves start changing and falling, scary movies galore on the tele, and all the fun activities!  So fun!  My boys love it too and Will is a good sport, although I tried to get him to dress up as a marshmellow but no dice.  Oh well, maybe next year.  The only bad thing about this year was the weather.  It rained and hailed so bad right at trick or treat time so it was really cold and wet.  It was still so much fun.  Loved it!


CRAZY HAIR DAY AT SCHOOL... he is such a good sport for his crazy mom! lol

PUPMKINLAND
My dear neighbor invited my sister and I to go with her to a playgroup activity at Pumkinland.  It was the cutest place for the little kids to have some Halloween fun! 
Maj goin thru the corn maze
Maj and his buddy, Gannon


COSTUMES AND SCHOOL PARTIES
Here's Mads getting ready to head to school in his costume...
And here's Mitchy boy headed to school in his BUG costume... He is my LOVEBUG:)
Guess who finally started school..... It's CAPTAIN ROO!
Here is my baby Major at school.  I was sad to leave him there but it didn't really hit me until I had dropped Mitch off at school and I didn't have my little Maj in the back talking to me the whole way home.  I bawled all the way back to the house.


TRICK OR TREAT???
my grapes were very sparse by the time I got home... stinkin wind:(  Oh well, it was fun and the boys LOVED it! lol